our doctors are fairly certain the cause of ridge's problems is a rare disease called multifocal lymphangioendotheliomatosis with thrombocytopenia, or MLT. As far as they know, about 15 people in the world have this disease. All of them are children. The outcomes are not the same for all of them. The disease was discovered in 2004. There is no cure. There are some treatments, but not all of them work on everyone.
I am too tired and too sick to my stomach and too desperate to type any more right now. We are begging for your prayers. We are pleading for divine intervention and a miracle. And we are asking you to donate blood in his name if you are an Oklahoman. Any blood type can give. If you are O negative, we are asking you to designate your blood be given directly to Ridge. You are allowed to request this. All information you may need is listed in my previous blog.
- alisha
- wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
12 comments:
oh my gosh Alicia! My heart is breaking for you guys! You are all definitely in our prayers.
We are praying for baby Ridge. My husband was Brandon's youth minister for a little while. Know that we are thinking about you.
you are in our constant thoughts and prayers... we love your family and are praying for a healing miracle and His strength, comfort, and peace for you all...
Alisha, I sent you a message via Facebook regarding a contact at OBI for a blood drive and designation of blood for Ridge. You're in my prayers.
Alisha & Brandon, I just heard about baby Ridge. Please know that all of you are in my prayers.
Shanna Lewis
Alisha, my heart just goes out to you all. Prayers and lots of ((hugs))!
I'm going to Norman today and going to give blood while I'm there. I'm o negative. I'm praying!!
You don't know me and I don't live anywhere near Oklahoma, but a friend of mine told me about your story. My children and I just lifted little Ridge up to Jesus and I know he heard us. We will continue to pray with you through this. Susan
hey friend:) I have a coworker who lived in Norman, OK for 11years and know several people there who can probably donate...I'm continuing to spread the word here in Arkansas - please know that you have many, many brothers and sisters here lifting Ridge and you guys up in prayer. Love you!
My friend, Courtney led us to this blog. I am a mother praying earnestly for you, your son and your family. I didn't realize until later who you are. My children have had your mother, Cindy in school. We love her dearly. We will continue to keep you in our prayers.
Trusting the Father,
The Fischers
Praying for you guys! Cannot imagine what you must be feeling.
Alisha-
Staying up late browsing the net and found your blog. I just wanted to say that after seeing you today, you and Brandon are being so strong for your family. I will continue my prayers for you all. Please let me know if we can help with anything.
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