So...Ridge's counts were back down a bit today....Sunday he had a hemoglobin level of 8.7 and then Monday it jumped to 10.1...Tuesday it was down to 9.4 or so, and then Wed. it was back up to 10.1....today, back down to 8.6. Normally, this would not be bad news...so I guess it still isn't really bad news. We just liked that 10.1! Ridge is super puffy from the steroids, even though he isn't on as high a dose as he was three weeks ago... Today he has been sort of out of sorts-- not really fussy at all but not happy-- just kind of lethargic....he has let someone hold him in the rocking chair most of the day- and maybe that's normal for most babies...but not for Ridge. Ridge is a stand up baby-- he wants you to be standing when you hold him. Otherwise, he is usually screaming. He also hasn't been very talkative or "smiley" today, and this is out of sorts for him, also. So...I have been watching him fairly closely, but haven't noticed any scary changes in him (yep, we still have pretty yellow poop)....his heart rate has stayed normal and his breathing has stayed pretty normal, also....so there aren't really any signs of an active bleed coming; it is just disturbing how he's acting. Not many people would probably notice- but I do...b/c I'm his mom (in case you didn't know that).
No other news really that I can think of. Still praying, praying. I've told God several times lately that I'm just ready for it to be over with. I feel like such a wimp saying that b/c it's not like we've been dealing with this for months and months and years and years. So I suppose we can endure more...we just don't want to.
Because of lack of update, and to preserve your time, I will post some more pics instead of just writing, writing, writing!
Have a good one-
the carys
2 comments:
Thought these song lyrics were great and might give you guys a little added resolve in this battle:
When you're up against a struggle that shatters all your dreams
And our hopes have been cruelly crushed by Satan's manifested schemes
And you feel the urge within you to submit to earthly fears
Don't let the faith you're standing in seem to disappear
Praise the Lord, he can work through those who praise Him
Praise the Lord
For our God inhabits praise
Praise the Lord
For the chains that seem to bind you, serve only to remind you
that they drop powerless behind you when you praise HIm
Satan is a liar and he wants to make us think
that we are paupers when we know we are children of the King
So lift up your might shield of faith for the battle must be won
Jesus Christ is RISEN and the work's already done
Praise the Lord, he can work through those who praise Him
Praise the Lord
For our God inhabits praise
Praise the Lord
For the chains that seem to bind you, serve only to remind you
that they drop powerless behind you when you praise HIm
Love you,
Sue
Thank You Heavenly Father for UPlifting Ridge in his down moments. Reassure his spirit Holy Spirit in Your Comfort. Thank You Jesus for coddling Ridge at every moment even when his countenance down, in this we celebrate and rejoice for Your Touches and Comfort Measures in reassurance, in Your Holy and Inimitable Name, seeking Your Excellence Always~ KL
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