sorry for the delay

I haven't posted in a couple of days b/c...well...I've had little to post about. Nothing has really changed here...Ridge is still bleeding, his meds are still the same except for a few additions. We didn't have any sleep apnea issues last night, thank goodness. He is supposed to get his broviac line in today- sort of like a port- in his chest...so he hasn't been able to eat since 2 am....but now it's almost 9 and they say he won't get in till around 10:30 at the earliest, but he has to get blood before then and that takes about 4 hours...so basically he has to go ALL day without eating. I'm so frustrated because I could've let him eat earlier this morning and he would not be so tired and fussy, and most importantly, bleeding as bad. It's just so annoying b/c I know no one really knows how to address this disease and everyone is doing the best that they can and trying to help our child get better, but anyone who is a mom knows that it just never seems good enough bc you would give your life for your child to be made whole, or at this point, to just stop bleeding! I have to keep reminding myself that even these little frustrations, like Ridge not eating, are moments that God has already seen. I am my child's advocate, so I do have to speak up in these frustrating times, but I also am trying to keep my head on straight...because regardless, God knows what is going on...and unlike humans, HE is watching out for my son, evenmoreso than I am. And He already did give his life for Ridge to be made a different kind of whole. So, I am trying to remember that. Pray that Ridge is healed. Pray the bleeding stops. Pray that we will remember the sovereignty of God in these trying times and be given a peace that surpasses all understanding.