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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne

The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Thursday, August 27, 2009

another day of waiting...

Nothing new to report, but I know some of you check this daily, so wanted to type a note while I have some time.

Ridge has gone about 12 hours w/o any blood in the poop-- well, visible blood...and w/o any blood in the spitup. This is good news, although it may not mean he is not bleeding-- he at least is not actively bleeding right NOW. he is sleeping as I type this. The only concern I am having right now, other than just being totally rid of this disease, is that Ridge's apnea has sort of returned. His oxygen levels stay in the good/great range, so the apnea itself isn't a problem. The monitors do keep going off saying he isn't breathing. Often, we check, and he IS in fact breathing, just kind of, the problem is moreso w/ the monitors getting on our nerves than w/ Ridge's condition itself. I don't think that there is anything to be worried about, and neither do our doctors. But it is still annoying b/c you can only pause the monitors for 3 minutes, then they go off again. Right now the monitor says Ridge's respiration rate is zero-- but I can clearly see his little belly going up and down- he is breathing, just maybe not the way the monitors need him to in order to register. It's just annoying. So, if you could pray that this stops, either b/c the monitor decides to cooperate or b/c Ridge begins breathing the way the monitor wants him to...well, that would be great. And keep the prayers coming for the bleeding to stop and for healing and a miracle.

Every night when we pray for supper together, Sawyer says "Dear Jesus, Dear God, make Ridge feel better and give us a miracle. Amen." He doesn't understand he can also ask God to bless the food/thank God for other things in the same prayer. I can't really blame him...I know I can ask God for anything, but what Sawyer prays is pretty much the singular cry of my heart right now also. Thank you for allowing it to be a part of the burdens you carry and a part of the requests you make known to God.

Have a blessed day-

the cary fam

1 comment:

Susan said...

Sorry about those monitors...I wish the technology in them was perfect so it would actually always be accurate. It would make my job so much easier, but more importantly ease the fears/worries of ALL of the parents on our floor, instead of just making them crazy!! Glad to hear Ridge has been having good days this week and can't wait to see you all tonight! Also, I wanted to let you know that your family has been added to our prayer list at church, so more of God's people can lift up prayers for Ridge's healing! God is great and nothing is impossible for Him!

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