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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Saturday, September 19, 2009

food baby....

i apologize for having no photos on me- cameras not with me right now.  but we really don't have too good of pics of it anyway.  so ridge had the rice cereal the other day- i have a photo posted here somewhere.  he loved it, ate it like a pro.  i asked today about baby food.  originally, before all of this, i was not going to give him baby food at all till around 6 months, and then i was going to mash it myself.  but...things are different, so i must adjust.  so i was ready for him to get to try some other things; so today we got the okay to try baby food.  so...we tried green beans- which is the best thing to start w/, i think.  he LOVED them. ate them twice today and rice cereal twice today.  last night, brandon gave him a bottle at 6:40 bc i was gone with sawyer to the movies (cloudy w/ a chance of meatballs- take your kids to see it)...anyway, i wasn't there to feed ridge, so brandon gives him the bottle.  i get back around 8 thinking ridge will need to eat around 9 or so.  ridge is asleep when i arrive, and he doesn't wake up to eat until...drumroll please....2:30 this morning!  wooooooo HOOOOOO!!!!!  then he makes it another five hours before eating again!  and he didn't eat as often during the day but only b/c he wasn't hungry!  he's doing so good w/ the food stuff.  

his counts were decent today- he got blood the other day and his hemoglobin was actually up from that count, as was his hematocrit.  platelets are still dropping, which is totally normal w/ the disease....still annoying, but normal.  we think the platelets were possibly high b/c he was on a high dose of IV steroids.  now he is on a moderately high dose of oral steroids.  but everything else was good (blood counts)....so it's fine.  

i'm home w/ sawyer tonight, church is tomorrow.  being here w/o ridge is always sad but hadn't really bugged me until the last time i was here- it's really hard to look in his room that we worked so hard on...knowing he should be sleeping in there, playing in there, talking/cooing/laughing in there....but he's growing up somewhere else.  again, i know we are where we need to be. i know God is taking care of us.  Sawyer loves the song "Mighty to Save" and asked me to play it for him tonight...so it is blaring out of the computer when i walk into ridge's room.  all i could do in that moment was just fall to my knees and again beg for God to heal him....as I will continue to do, daily.  we know we will have good days and bad, but our faith will not falter....it will not always be perfect, but it will always be THERE.  We will always trust in our God...b/c....Savior, He can move the mountains...My God is Mighty to Save, He is Mighty to Save....Forever, Author of Salvation, He rose and conquered the Grave, Jesus conquered the Grave...

peace out.

the carys

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