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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Thursday, September 10, 2009

I have to start thinking of good titles....

So...Ridge's counts were back down a bit today....Sunday he had a hemoglobin level of 8.7 and then Monday it jumped to 10.1...Tuesday it was down to 9.4 or so, and then Wed. it was back up to 10.1....today, back down to 8.6. Normally, this would not be bad news...so I guess it still isn't really bad news. We just liked that 10.1! Ridge is super puffy from the steroids, even though he isn't on as high a dose as he was three weeks ago... Today he has been sort of out of sorts-- not really fussy at all but not happy-- just kind of lethargic....he has let someone hold him in the rocking chair most of the day- and maybe that's normal for most babies...but not for Ridge. Ridge is a stand up baby-- he wants you to be standing when you hold him. Otherwise, he is usually screaming. He also hasn't been very talkative or "smiley" today, and this is out of sorts for him, also. So...I have been watching him fairly closely, but haven't noticed any scary changes in him (yep, we still have pretty yellow poop)....his heart rate has stayed normal and his breathing has stayed pretty normal, also....so there aren't really any signs of an active bleed coming; it is just disturbing how he's acting. Not many people would probably notice- but I do...b/c I'm his mom (in case you didn't know that).

No other news really that I can think of. Still praying, praying. I've told God several times lately that I'm just ready for it to be over with. I feel like such a wimp saying that b/c it's not like we've been dealing with this for months and months and years and years. So I suppose we can endure more...we just don't want to.

Because of lack of update, and to preserve your time, I will post some more pics instead of just writing, writing, writing!

Have a good one-
the carys

2 comments:

Anonymous said...

Thought these song lyrics were great and might give you guys a little added resolve in this battle:

When you're up against a struggle that shatters all your dreams
And our hopes have been cruelly crushed by Satan's manifested schemes
And you feel the urge within you to submit to earthly fears
Don't let the faith you're standing in seem to disappear

Praise the Lord, he can work through those who praise Him
Praise the Lord
For our God inhabits praise
Praise the Lord
For the chains that seem to bind you, serve only to remind you
that they drop powerless behind you when you praise HIm

Satan is a liar and he wants to make us think
that we are paupers when we know we are children of the King

So lift up your might shield of faith for the battle must be won
Jesus Christ is RISEN and the work's already done

Praise the Lord, he can work through those who praise Him
Praise the Lord
For our God inhabits praise
Praise the Lord
For the chains that seem to bind you, serve only to remind you
that they drop powerless behind you when you praise HIm


Love you,
Sue

Anonymous said...

Thank You Heavenly Father for UPlifting Ridge in his down moments. Reassure his spirit Holy Spirit in Your Comfort. Thank You Jesus for coddling Ridge at every moment even when his countenance down, in this we celebrate and rejoice for Your Touches and Comfort Measures in reassurance, in Your Holy and Inimitable Name, seeking Your Excellence Always~ KL

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