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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne

The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Monday, October 12, 2009

actually something to update!

Ridge's counts have been going down the last week as a result of several labs done in one day. They went up a little today, so we hope we are on the turn around there. In a little while, today, Ridge will have his PICC line removed (this is located in his arm and the line/catheter itself runs up towards his chest internally). This line is used when his central line clots off and his meds need to keep going somehow, and it is also used when he receives blood. Kind of a big and scary step, but the thought behind it is that the line is used so rarely, it really isn't functional right now. So, we remove it, and then in a desperate situation, a new line can be placed. In a routine blood transfusion or in an event where the central line clots off, I suppose the meds could be stopped for those 2-4 hours. scary, but also kind of exciting. They continue to reduce Ridge's medications and we aren't really seeing anything negative yet from this being done, so that is also good news.

Sawyer's small class @ school has been experiencing some flu-like symptoms, and we have thankfully avoided it. Since this is Fall Break week, we have kept him "home" (aka at the hospital) with me today to see if anyone else is absent/sick/sent home from his class today. We figure if whatever's going around can run its course through his class this week, maybe he will avoid it and in turn, so will Ridge and Brandon and myself. We will see. He has been really good up here today and it has been nice getting to actually spend some time w/ him b/c i do not see him much. Don't get me wrong- I could NOT do this daily, and I am SO SO SO appreciative that he has somewhere he can go and play and learn every day. But I am also very glad to get to spend the day with him today. And I am also very passionate about avoiding the flu/h1n1/whatever at all costs. I won't start the vaccine debate, I have no idea how I feel about the h1n1 vaccine and we are so on the fence about whether or not we will be getting it....probably not. of course tomorrow i might say we will. we DID get the regular flu shot, and i am all for that. enough of that discussion.

Thank goodness for the Christmas shopping for Sawyer is halfway finished, as is Brandon's shopping for me, since I picked out my own gift and showed him the website for him to order it. :) Ridge is a toss up b/c I have no idea what to get him. He really doesn't need anything, and it's too soon to know what size clothes to get him, even though he doesn't need clothes. So...maybe I will get him a lot of diapers and baby food. Who knows? For everyone else, there's giftcards. No surprises this year, folks. Even if we are home, I sure don't think I will feel confident enough to get out there and shop w/ Ridge in tow. So I don't feel too behind. Just a little...normally I'm finished by about now, but it's okay....yay for the internet.

The little one is waking up (i've been blogging with BOTH children asleep!) so I better tend to him.

love to you all!


Anonymous said...

Innoculation is PSALM 91, HIS WORD that never fails us. HalleluYah. Steadfast FAITH. No weapon formed against us shall prosper and WE CONFUTE every tongue that rises against us in judgment for this is the heritage of the servants of The LORD and their righteousness is from ME, says The LORD. Isaiah 54:17 STAND FIRM ON HIS WORD, for Greater is HE that is in you/us than he that is in the world! Remember there is death and life in the power of our tongue and we can eat the fruits there of... Proverbs 18:21 Becareful for what you speak out there in the negative for it will prosper and against you... the accuser knows this well that is why he is after those that BELIEVE and stay steadfast in pursuing faith. Don't give him any room or legal grounds with The Throne of God. Like Job... satan asks for us! Take Heed and fight for your children in decreeing His Word with faith pursuing in steadfast positive authority, in Jesus Name of Nazareth. Helps ministry at work~ The Helper The Holy Spirit, a friend of God's KL

Anonymous said...

Praising The Father for seeing you through even in the length of this journey;

My brethren, count it all JOY when you fall into various trials, knowing that THE TESTING OF YOUR FAITH produces patience. BUT let patience have ITS PERFECT WORK, that you may be PERFECT and COMPLETE, LACKING NOTHING. If any of you lacks wisdom, LET HIM ASK OF GOD, who GIVE to ALL LIBERALLY and without reproach, and it will be given to him. But LET HIM ASK IN FAITH, with NO doubting, for he who doubts is like a wave of the sea driven and tossed by the wind. For let NOT that man SUPPOSE that he will receive anything from The Lord; he is a double-minded man, unstable in his ways. James 1:2-8

BUT without faith IT IS IMPOSSIBLE to PLEASE HIM, for he who COMES TO GOD MUST BELIEVE that HE IS, and that HE IS A REWARDER of those who DILIGENTLY SEEK Him. Hebrews 11:6

Faithful are the wounds of a friend, but the kisses of an enemy are deceitful. Proverbs 27:6

He will perfect all that concerns you, in secured faith fixed on HIM. HalleluYah, keep this forever, Proverbs 3:7 Do not be wise in your OWN EYES; fear The LORD and depart from evil. It will be health to your flesh, and strength to your bones.

Open rebuke is better than LOVE carefully concealed. Proverbs 27:5; Ointment and perfume delight the heart, and the sweetness of a man's friend gives delight by hearty counsel. Proverbs 27:9; Whoever has no rule over his own spirit is like a city broken down without walls. Proverbs 25:28; As iron sharpens iron, so a man sharpens the countenance of his friend. Proverbs 27:17~~~ Reexamine, repent where HE shows you, and be upright moving on, in Jesus Name of Nazareth. The Bride of Christ, purified. His Peace in Spirit and Truth, Abundant Life and WHOLE Victory, in spirit, soul and body. Bless Ridge, Righteous and Unsearchable Father for Grace and Mercy, in Jesus Name of Nazareth, Amen. KL

Anonymous said...


My name is Andrea Vitek. My two year old son has MLT. I'm sorry that you are going through soe tough times. It does get better. If you ever have any questions please let me know. 469-258-5408

Andrea Vitek