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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Friday, October 16, 2009

more updates

So....the lowering of the octreotide...not such a good idea apparently. I thought we were seeing some negative side effects yesterday, but not 100% certain. Wed. is when they reduced it, and we had a small spitup incident that night, yesterday during the day and also this morning. Yesterday, I thought the diapers were getting some darker, but couldn't be 100% sure...and today, the dark poop was back. So, the octreotide was immediately put back up to the dosage it was on right before the reduction. Pray that this step is enough to fix it as far as the medicine goes. I do NOT want that lowering of meds to result in an active bleed....so pray pray pray!

I think that's the only real update.

Okay, so from watching Prince of Egypt 872671268534 times since we've been at the hospital, I've gotta share this with you....I will add it to the playlist.

When You Believe

Many nights we've prayed
With no proof anyone could hear
In our hearts a hopeful song
We barely understood

Now we are not afraid
Although we know there's much to fear
We were moving mountains long
Before we knew we could


There can be miracles, when you believe
Though hope is frail, it's hard to kill
Who knows what miracles you can achieve
When you believe, somehow you will
You will when you believe


In this time of fear
When prayers so often prove(s) in vain
Hope seems like the summer birds
Too swiftly flown away

Yet now I'm standing here
My heart's so full I can't explain
Seeking faith and speaking words
I never thought I'd say

There can be miracles, when you believe
Though hope is frail, it's hard to kill
Who knows what miracles you can achieve
When you believe, somehow you will
You will when you believe


They don't (always happen) when you ask
(Oh)
And it's easy to give in to your fears
(Oh...Ohhhh)
But when you're blinded by your pain
Can't see your way straight throught the rain
(A small but )still resilient voice
Says (hope is very near)
(Ohhh)

There can be miracles
(Miracles)
When you believe
(Lord, when you believe)
Though hope is frail
(Though hope is frail)
It's hard to kill
(Hard to kill, Ohhh)
Who knows what miracles,you can achieve
When you believe, somehow you will(somehow,somehow, somehow)
somehow you will
You will when you believe

You will when you
You will when you believe
Just believe...in your heart
Just believe
You will when you believe


Okay, so I know WE won't perform a miracle. But man...that song...watching that movie, hearing that song. Just ... wow. I'm also not adding another song (bc my playlist website doesn't HAVE it) that a reader sent the lyrics to...it's a great one, I just had forgotten about it. "That's What Faith Can Do" (thank you, Tami O!). For those lyrics, check out my last post's comments.

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