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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Tuesday, November 10, 2009

today today....

For those of you who prayed for Stellan yesterday, THANKS! you can check mycharmingkids.net to see how AWESOME things turned out!

Here's our updates :  The poop, today, looked super  brown- which isn't yellow, but is better than black!

His hemoglobin is dropping some still...moreso than normal. BUT he is still well above transfusion level, so we are hoping things slow down a bit.

I think that's about all the updates.  His IV is still working well, in case we need it.  He is sitting in his bed playing.

He...I'm referring to Ridge, as if you didn't know.

So all in all, things seem good.  I have asked several times about trying a new drug that was recommended to me....everyone is hesitating.  I'm ready to try it so we can see if it works, and monitor him HERE, so we can know if it works or not...I want to start soon so the monitoring can begin...so we can hopefully be home at CHRISTMAS.  So please pray that would all play out the way it's supposed to...not that it would play out any other way, of course.  I really really would like to be home at least for one day...the 25th of December.  And some of you better watch out bc that is a LOT closer than it feels like it should be.  It's just around the corner!

A few more things I forgot the other day--
our family pictures are up. thanks, copelands, for hanging out with us that day and for doing that for us.

thank you, sonic in yukon, for doing the fundraiser a couple of weeks ago for Ridge.  I forgot to mention it on the blog, but i did NOT forget it!  So nice of you.  thanks thanks thanks!  overwhelming.

To blog readers Tami and Josh who sent the care package- love it. so sweet, so thoughtful, such a blessing! Thank you for taking the time to be so good to us.

Have a great day! As always, pray for yellow poop!



1 comment:

Anonymous said...

You are very, very welcome! We are glad that you enjoyed the contents of the care package. We don't have any kids of our own yet, but we do have three 4 month old nephews (one set of twins) that we love to spoil. And seeing pictures of how cute Ridge and Sawyer are, we just couldn't resist spoiling them a little bit too!!
Your family continues to be in our prayers and we will pray even more that your family will be able to be HOME together for Christmas!

Tami and Josh Ochsner

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