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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Monday, January 18, 2010

i know it's pictures...and this isn't the photo blog...but still

I don't have a lot of writing to do right now.  I don't have a lot to say, really. 

Here's what's been going on, then I'm just gonna put some pics up of well, what's been going on.

medically:  ridge's hemoglobin has been good.  we came home w/ hgb of 13.1.  it was 15 the next three days.  then, it dropped to 12.9 and dark stools resumed....bc ridge takes an antibiotic on the weekends.  we had correlated this before but not really been able to get anything done about it, bc it "didn't make sense that the antibiotic would make him bleed."  obviously...that's what it was.  we stopped the antibiotic, and, ta da, he stopped dropping blood counts and stools are getting better.  but his immune system will be weaker.  because of the steroids.  w/o any prophylactic.

We came home last Tuesday.  This, today, is the first Monday we've been home since July 28th. 
We've been to a Miller basketball game.  We've been to church.  We've been up at my school.  We've gone on a walk around the neighborhood.
We've been....
normal.





well, for those of you who haven't seen a port accessed, here it is.  one day i will take a picture of what it looks like normally- just a little scar is really all it looks like.  the OTHER side of his chest, that's his central line  (the white cord line)...that's always there.  that's where he receives his octreotide infusion 24/7.  this was all when we were still at the hospital.


These pics are of Ridge the night we got home.  notice, he is on his belly sorta ready to crawl in the top picture.  in the bottom picture, he is seated.  these things occurred in that order.  he was seated, then he got in the belly crawl position, then, tada! he got himself back up.  good job, kid.


CHURCH pictures!  Ridge hasn't been to church in...well, a loooong time.  How stinkin cute!  He's dressed up like a little man....complete with some navy leather loafers! 

and here, below, i was practicing setting up the self timer....these aren't interesting, but they are kind of funny to look @ the boys' faces!  or their dad's face... :)  plus, you get to see what our living room sorta looks like since you always see HOSPITAL pictures.  and these...well...they are at our house, in case you didn't know WE ARE HOME!


and today, it was so nice outside, we went for a short walk.  ridge loved it.  we also got to use the double stroller my parents got us when Ridge was born.  I loved it six months ago, and love it today.  we just haven't gotten to use it much.  this first picture is all right....the second, sawyer was supposed to be looking "happy."  yeah.  that's happy.  good job, man. 
ridge had a GREAT time outside!

a couple of questions about ridge have come in- so here are those answers.  1. can you shave your legs in those hospital showers?  ha ha.  yes.  but not easily.  so it usually gets skipped.  and come on, i'm sleeping in the same bed with RIDGE usually. or i'm sleeping alone.  he doesn't care.   and i certainly don't.
2. when you say "spit up" do you mean he's spitting up blood like before?  yes, and no.  if i say he spit up i mean...like what all babies do-- barfy stuff after they eat.  but his spit up often has brown streaks in it or red clots in it, etc.  if he is full out vomiting, i'll say vomit, barf, puke, throw up, etc.  i think i answered that question well, but if not, please let me know (you know who you are, ya breadloaf).

if YOU have any questions- needstobebusy@yahoo.com

i'm outta here.

2 comments:

Megan said...

alisha, i love all the pictures-keep them coming. your boys are so cute and it looks like you guys are having a great time being home and doing normal things. i LOVE the pic of ridge in his sweater vest and loafers!

have a great time getting back to life at home.

p.s. your house looks very pretty!

maybe next time i'm in the city ridge and kate can meet again!

love ya,
megan

Susan said...

What handsome little men you have!! And such a beautiful family altogether! So glad you finally got to go to church together and that you are still home!! Still praying as always!

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