i am addicted to zingers. all you people who love us, do NOT send me boxes of these-- not to be nice, or a friend, or to play a sick joke. i can NOT stop eating them....the vending machine has 3 flavors, and i don't care which ones are available, i love them. disgusting. we eat like trash up here, and sometimes, i like it. i like it when people bring us good food too- so thanks if you've done that, ever before. we aren't being forced to eat zingers and cornnuts, i'm just choosing to do that. i sicken myself.
ridgers understands food now. he is NPO, meaning no food/drink, and has been for the past 27 hours. his octreotide has been increased to stop his bleeding, but the bleed continues. his platelets are ridiculously low. he does seem to be responding better to his transfusions, so that is good news. we have not been in a place this dark with the disease in about 8 or 9 months. the boys are supposed to celebrate their birthdays in style on saturday. i guess we'll party it up here at the hospital. if you were invited (sorry if you weren't. i guess now you are), i guess don't show up at my house. someone will be there, but it won't be the party crowd. so head our way. so he understands food- as in, when i was eating my hospital food, he watched me take every bite until i had to just stop bc it was too hard to eat in front of him since he can't have even a nibble. oh my heart.
got some cool news about a study in an MLT girlie-- have requested the study be done in Ridge. will keep you posted on if we find anything of any value that will help us to control his bleeding better. i am excited to at least try this. i am wary of new meds, and this would be one way to curb that suggestion for a while. i'm ready to be done with this ridiculousness and get a normal life back.
this has been a hard week. taxing on emotions and on spirits and on relationships and some things that have been bad/stupid/ugly/ridiculous haven't even had to do with ridge's disease, or even really ridge. no details are really available/i shouldn't post about this really....but suffice it to say when people are vicious or snooty or tattly or whatever towards people we love, it gets on my nerves.
ridge is waking. gotta go.
thanks for the prayers. i see a zinger on the bed-- maybe i will eat it. i can't say no.
- alisha
- wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
3 comments:
You deserve to eat all the ZINGERS you want!!! Go for it!
Let us know if you need anything at all...even junk food!
When Ridge can eat I will make you all a fabulous (maybe somewhat healthy) dinner, not sure how picky you are when it comes to healthy standards. I think and pray for you all daily. I am so sorry for all the other stresses that satan has put in your path this past week. I will pray that you will not have to deal with them anymore!
I myself have been dealing with satan on a weekly basis for about a month and things are starting to turn around and like you said not even have to do directly with our family.
Okay now I am blogging on your comments so I better say bye before I start a new page :)
Keep your heads up and give Ridge a hug and kiss (I'm sure he gets plenty!)
Hey Alisha, a friend of mine whose daughter has been diagnosed with an auditory impairment posted this thing about going to Holland. I thought of you immediately because of all the changes you and your family have experienced in the last year. I'm praying for you guys and hope this lifts your spirts a little...her his her blog..http://billupskiddos.blogspot.com/
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