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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Friday, October 8, 2010

we need your help.

Below is a picture of some of the children with MLT/CVAT, the disease Ridge has.

Wisconsin is working on gathering funds for research on this disease. So far, there is little to no research on the disease, and there is no known cure or treatment.

Ridge is fussing, so I can not share a lot right this second, but here is a link to a petition we are working on to gather funds for MLT research.  Please take the time to sign it, and share it with those you know.  This would provide funding for research on the disease and help doctors figure out (possibly) more effective treatments.  It would also help, hopefully, provide funding for MLT families like ours to travel to Wisconsin when needed for research opportunities (no guinea pig stuff- we won't do that...I'm talking about labs and stuff that has to be done on site).

When you fill out your information, you click SIGN NOW, and then you must click SIGN again for your name to go through. Please take less than one minute to do this for these kids.

click here to sign the petition!
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