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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne

The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Sunday, August 16, 2009

and it just keeps coming

We are having a serious rough patch. Friday night, Ridge entered ICU grandly by throwing up blood all over the floor. This is how we entered ICU the FIRST time. He wants everyone to know he IS here, and he IS in fact needing some medical attention, I guess. Friday night we had 3 rounds of bloody vomit followed by a couple of bloody diapers. I apologize for the "too much info for some of you", but there are others who this is the best way to follow exactly what we are dealing with. Last time we dealt with an episode, day 1 was the worst. This particular episode has lasted over 24 hours and is still going. Yesterday he had another vomiting issue, and 3 diaper issues I believe. This morning, we have had 2 bloody diapers already and another large vomiting blood incident. The doctors will begin Ridge on steroids today to hopefully reduce the inflammation of the lesions and reduce the bleeding. Our GI doctor has been in this morning and told us we have to figure out a way to reduce the amt. of lesions so that we can reduce the amt. of bleeding. This most likely means some sort of surgery- either by removing part of his stomach or by scarring the tissue that contains these lesions. Not what we want to hear, but glad that there is SOMETHING that might be able to be done to reduce the actual lesions. It is just a desperate feeling-- not necessarily in a bad way- looking at your doctor and telling them "we support whatever you decide, b/c we do not know at all what the best thing is in the situation. we put our son in your hands, knowing, he is not REALLY in your hands, but God's." We have been fortunate this week to have a doctor who vocally agrees with statements like these. We get a new GI doctor tomorrow, and then I believe we begin again with our first GI doctor-- so we've made it through almost the entire GI faculty! :) It is somewhat peace-bringing to know that even in the darkness or ugliness that is surrounding us now can not swallow us- because regardless of good news or bad, God is here. He is watching over us, and He WILL do what will bring most glory to Him. We will overcome this- by His Might, His Power, and His Grace and Mercy.

Last night, and for the next night or 2, we have a sleep room downstairs. It's so so nice, and for the first time since we've been here, I left the room @ night and stayed down there... and slept. Not that I haven't been sleeping when I was in the room w/ Ridge, b/c I have- and fairly well. But last night, I had that room all to myself and I slept for a good 10 hours. Before I went to sleep, like always, I prayed for Ridge. I prayed for Sawyer. I prayed for Brandon and myself as well. I had to just get on my face before the Lord and cry out to Him...for comfort, for strength, for well being for both of my children. For a miracle for Ridge. For God to be gracious and take mercy upon my family. We are ready to see Him move. We are ready for you to see Him move. We are ready for Him to show everyone who knows about this situation, and those who do not, that He is still Mighty. He is the same God who rescued Daniel from the lion's den, Shadrach, Meshach, and Abednego from the fiery furnace, the same God who healed the leper, gave sight to the blind, stopped the woman's bleeding after 12 years...the same God who brought back people from the dead, and the same God who sent His son to die, and raised Him to eternal life forevermore. He has not changed, and He still has the power to do such amazing and miraculous things, and we will not ask for less. In faith and confidence, we will boldy, and yet with humility, ask Him to rain down mercy upon us and show His power.

1 comment:

Bunny and Reta said...

"Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go" Joshua 1:9
Bunny and I pray for Ridge continuously.
Our hearts weap for the trial you're going through - but our hearts are hopeful and waiting to rejoice as the LORD shows us His will. Please give Lillie a hug from us. Hugs and kisses to you all. Love Bunny and Reta