Ridge is spitting up some brownish stuff and occaisionally redish/pink....he also frequently spits up just regular spit up/milk/etc....
They are going to reduce one of his meds, but not the steroid since he is spitting up blood products. He is getting a reduction on the med that is supposed to be permanent- his octreotide. We will see how that goes...the reduction begins tomorrow.
He's taking a form of prevacid that is supposed to dissolve in water...but it isn't so good at dissolving.
His blood pressures are still running high, so we may be introducing a secondary BP med but aren't sure yet....
He has been pretty happy. He is not eating a ton in the way of milk anyway, but he loves his baby food.
I guess boring is good; we don't have a lot to report. I can only speak for myself, but I am getting weary of this whole process. I want to be done with it. I know it isn't my timing, but I'm just done done done with it it feels like. I need a second wind, or a third wind, or something. It just gets so frustrating. One day at a time.......right? :) We are about to take the boys outside the hospital for a little fresh air and Vit. D!
Hope your Saturday is/was great!
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