My photo
wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Tuesday, September 15, 2009

still not much change...but change isn't ALWAYS good, right? :)

Ridge had another "normal" day. his counts are still stable. i don't have a ton to report. we are so thankful that God is watching over him and giving him such a long bout of good days...no blood for over 3 weeks now! today was day 49 of being in the hospital....49! gosh that's a long time it seems! Ridge has been doing well w/ his meds, except the prilosec so it was changed to zantac. we shall see how that goes! the last 3 nights as soon as all company has exited, ridge has fallen asleep w/in about 10 minutes and stayed down for several hours before getting hungry. it is wonderful getting to rest/read/blog/sleep and have some "sanity" for a few hours in a row. his constant med- octreotide- was changed back to a faster speed, so he is using a bigger pump now which will make it nearly impossible to use the wagon w/ him outside...bummer. but we should still be able to carry him on walks and push the pump at the same time. SHORT walks, b/c that kid is HEAVY!

thank you so much for the prayers. this event is all we have time for our life to revolve around right now- the disease, God's plan and healing and power, how the disease affects our marriage to each other and our parenting w/ sawyer, every decision is centered on this disease. keep the prayers coming- pray for healing and wisdom, and also, pray for illness to avoid us this flu season. brandon's had his flu shot. sawyer arnd i get ours on thursday. ridge is too young to get one, so we are hoping that most of his visitors that are old enough to have one and are able to get one do get one, b/c we can not risk him becoming infected on top of all this mess. so pray for our health. on that note, i did hear dr. oz say that while it is uncertain if the h1n1 vaccine will be any good @ all, one surefire way to avoid it (and i have no idea, i'm just repeating this) is 1000 units of vitamin D a day. so...there you go. there's some info for you. i already get that in my calcium pill, so i hope i'm good there.

hope you sleep well tonight...here i go to sleep myself.

love to ya.
the carys

3 comments:

Amy <>< said...

You have no idea how many times a day I think of you guys. My heart, thoughts and prayers are lifted with you in mind each day. I want to apologize now for not visiting more often. I don't want to bring Jackson up there for fear of bringing germs, not that he is germy, but being out and about the way he is I never know what he's carrying and I certainly dont want Ridge compromised. Also, due in part to your situation, I can't bear to leave him for one second more than I have to. My heart selfishly longs to be home with him every day. Then I think about you and how all you are wishing is that you could be in the position that I'm running from. Then everything comes back into perspective. You are so strong. I would have wilted long before now. You have no idea how much of a ministry you have been throughout this ordeal. I believe that God IS going to heal Ridge and that it is going to be a testament to the faithfulness of his parents. "Then your light will break forth like the dawn, and your HEALING will quickly appear; then your righteousness will go before you and the glory of the Lord will be your rear guard. " Isaiah 58:8

Anonymous said...

Praising Dr. Jesus! HalleluYah. Knock off the "dis" on disease and be at EASE the rest of this journey, trusting Dr. Jesus, our Healer in the healed, HalleluYah, Amen. JesUS
The God in US. HalleluYah, Amen. A friend of God's, KL

Anonymous said...

As a comment to your Wed. blog: Sounds like you are in deep grief over missing your work/job. That's nothing to be ashamed of or upset about. Grief is natural, not sinful--Jesus grieved. You ARE missing something you expected to have, but you also know that you are in the place God wants you. Grief and longing don't just go with missing people. Your world has been thoroughly shaken and turned over. And I really believe you don't "get over it" once and for all, but the grief of it all comes back to visit sometimes. You know the answer--pour out your heart to God. He's big enough to take it and love you back. Jana

There was an error in this gadget