I'm going to apologize ahead of time for the fact I will probably get some of this info wrong.
I am writing this Wed. night, but have kind of felt like a blogging fool today so I will save this and post it tomorrow morning or sometime.
So today has been kind of a roller coaster. Ridge is in this uncomfortable "parent" bed with me, bc I like having him sleep with me as much as possible up at the hospital. sleep? i mean coo and squeal, bc that is what he is doing right now....at 9:15 pm.
OKAY so here's the point to this post.
but you won't BELIEVE this next thing i am about to tell you....
okay, so we know MLT is rare. we haven't personally talked to anyone whose child has it. i've read one other blog about a little girl with the disease....but seriously-- 30 or so people in the WORLD with it, the odds aren't very good that you are going to personally connect to someone who has the disease, RIGHT? um. wrong.
so...my mom is a teacher. her school did a blood drive for ridge (thank you WHS). she was interviewed by the paper for an article about Ridge/the blood drive/his disease, i'm actually not sure bc i have not yet read it. apparently, someone in the community read it and realized that her niece has a son with the same disease. so my first thought, as i'm reading this note my mom sends me via FB about all this is, yeah right, it can NOT be the same disease. until my mom gives further details about the child's place of diagnosis, and where the child lives now, and what this child's name is. as i'm reading it, i'm going OH MY GOSH, I KNOW WHO SHE IS TALKING ABOUT BC MY DOCTORS HAVE SPOKEN TO THIS KID'S DOCTOR ... um...yes. so, and forgive me, for I believe this child's momma is going to be reading this possibly, anyway, forgive me if i mix up details, b/c i was not there firsthand...but this precious child's momma calls my parent's home and speaks with my dad...letting him know that her little one spent 6 months in the hospital and she never thought her baby would get better...but that baby did get better and has gone 4 months w/o a transfusion and is on no meds. that baby is now 26 months old. now all of that is hopeful enough. but for SERIOUS? SERIOUSLY? there was a connection in little weatherford to this other kid who has this same stinkin' disease? WHAT THE WHAT? seriously? no way. as with all of this...no coincidence. none. God. is. goodFLIPPING AMAZING. So thank you thank you thank you-- weatherford for doing the blood drive that led to that article and to the aunt who read the article and passed the info on to her niece who had the courage to call my parents and is hopefully now reading this blog...thank you.
what the heck else is there to say?