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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Wednesday, October 21, 2009

turn around, bright eyes....

my baby needs a turnaround. i'm typing w one finger as i hold him, so forgive typos. gross alert--dont read if you are easily sicked out--the diapers are dark and starting to look clotted and smell bad....the clots would be from his stomach or gi tract...the smell always worsens as more blood is passed.  the color is still blackish brown.  his hemoglobin dropped 1 point overnight, which is a big drop compared to the last 6 weeks.  normally, he drops 1 point in a week. the dr is upping the octreotide as well as reintroducing carafate, which ridge was on before.  there is talk of increasing the steroid. ridge will have another cbc tonight, so we will see how his counts are then. i hate this- all of it. pray for baby ridge.




ps- here's a link to a cute video of ridge, but im not sure it will work....




http://www.facebook.com/video/video.php?v=162414771852&ref=nf

3 comments:

Corie and Jason Orr said...

We are praying for healing TODAY. Thank you for keeping us updated so we know how to pray.

Anonymous said...

Praying for you all!

Mopsalot said...

Just prayed for you. I will continue to lift you up. We love you guys!