I am not 100% sure what all I've said in my updates, so let me update a bit again.
Last week, there was a reduction in Ridge's Octreotide/Sandostatin dosage. This was a failure. They have upped the dosage to what it WAS right before that, but I am not convinced that is enough, I think we need to "overcompensate" to fix the problem. Ridge's diapers are basically back to black. He is spitting up brown again. Today when I was holding him while he napped, his O2 levels kept dropping between 80 and 90...they are supposed to stay at or above 90. These are all not good "signs". They, in the past, have been precursors to not so good things. I have not visited w/ the doctor today but I will make sure to discuss all of this with her and see if we can change the game plan. While I wait, I read this out loud to myself and to Ridge, and I want to share it with you.
Psalm 20
May the Lord answer you in the day of trouble! May the name of the God of Jacob set you securely on high! May he send you help from the sanctuary and support you from Zion! May he remember all your meal offerings and find your burnt offering acceptable! May He grant you your heart's desire and fulfill all your counsel! We will sing for joy over your victory, and in the name of our God we will set up our banners. May the Lord fulfill all your petitions. Now I know that the Lord saves His anointed; He will answer him from His holy heaven with the saving strength of His right hand. Some boast in chariots and some in horses, but we will boast in the name of the Lord, our God. They have bowed down and fallen but we have risen and stood upright. Save, O Lord; may the King answer us in the day we call.
Okay....so I want you to sing for joy over our victory- the Lord's victory. I want you to set up your banners in the name of our God. I want the Lord to fulfill all of OUR petitions- OUR, meaning yours, and mine,- for Ridge. So thank you for the prayers. Keep them coming. Be ready to rejoice.
musings of life and laughter...composed between loads and loads of dirty laundry (which we will attempt to avoid airing here)... stories of trials and faith, of falling and rising, and of the steadfast arms of our strong, strong God.
- alisha
- wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne
The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ
The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ
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1 comment:
Mrs. Cary, I am still thinking of little Ridge and the rest of your family and praying for you.
2 Timothy 4:6-8 (I really like this verse)
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