My photo
wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Friday, March 19, 2010

spring...BREAK?

I don't know how much of a break any of us got around here this spring break.  I am not yet back into the swing of things being home.  We came home from the hospital on Wed. afternoon, I worked on jewelry and an apron yesterday while daddy and Ridge watched March Madness and Sawyer went to the zoo with Gibby, et al. I wasn't feeling great yesterday and by last night I knew I was really not feeling well...at all.  I climbed into bed with Ridger, trying to avoid contaminating him, and around 2 AM I had to go lay on the couch.  I woke up several times in the night, and while the thermometer assures me I didn't have a fever, I know I did.  So I stayed in bed all day.  I germ-x'd my hands a gajillion times and wore a mask when I fed Ridge.  I am pretty sure I have the same exact thing I had two weeks ago, the same exact thing that landed Ridge in the hospital, at least that's what we THINK landed him in the hospital.  So pray that I get better, but mostly pray that Ridge doesn't catch this.  I hate going to the hospital. I hate living with this.  I try to keep a good attitude, but I am really in a place right now where I don't like having to have this abnormal life.  It's swallowing me whole it seems and I just want everything to go away.  So please pray we have another good stay at home. Pray Ridge will be healed of this stupid disease, and pray that someone somewhere out there in this day and age will please find a cure for this ridiculous disease.  We have so many resources at hand in our society, and in the world at large.  We have great minds all over the world working to find cures for cancer and other diseases that plague many, and I don't doubt that one day, hopefully, they will.  But MLT isn't a known disease. It isn't popular. You probably won't ever hear of another kid ever that you actually KNOW having an MLT diagnosis.  So it probably doesn't rank uber high on the list of diseases we need to find a cure for.  Pray for understanding of the makeup of the disease, the way it works, and how it could be treated.  What Ridge is being treated with now is managing the disease, but he is on some meds that he probably can't be on long term.  Well, he CAN if it's choose that to live, but I mean, things that are less than ideal.  This isn't normal to me yet.  Ridge is almost 1 year old, and this is still not normal to me yet.  Maybe it's because I'm sick today or maybe because I'm tired or maybe both or maybe something else completely, but I am just not able to shake it today.  I want my son to live a normal life. I want him to be free of this disease.  I want the other 30 kids suffering from this to be free of it as well.  I want it to be over.  So please pray for our peace, please pray for the doctors and great minds out there to find a medicinal cure, but if you haven't prayed this in awhile, or if you pray it every day- please, tonight, pray for a miraculous healing in our son's life.  I know God doesn't have to give us that.  But I'm asking you to pray for it anyway.

xoxo-
the carys

3 comments:

Erin said...

Hang in there...this is just one of those mommy breakdowns we have...the world is a little too heavy for you right now BUT I will pray for all you asked for AND for you! YOur sanity, attitude, spiritual,emotional, physical...and the list goes on! I know He will get you through this one!

Mandy Kniskern said...

Praying, praying, praying for you all tonight.

Anonymous said...

Rest assured, we have never stopped praying for Ridge's healing. This is such a heavy burden for you to carry, and we pray about that too. Today, I am also praying that you will stay healthy, and that your spirit will be uplifted by the prayers of many, many people on your behalf. We love you. Alethea

There was an error in this gadget