we are in the hospital, so my post will probably be a little bit abridged...
short of it:
1. ridge is getting four teeth. by the time we realized this, he had started bleeding. he got blood last sunday, and after that, had one day of normal diapers and then all week has been having the black "bad" ones....so...
2. we got blood thursday and went home (late, due to some stupid orders)
3. we came back friday bc he'd already blown right through all his transfusion from thursday. but after getting blood friday, although he was still having BLACK diapers...he didn't need blood again saturday...or sunday...and he didn't even need it monday but it was so "close" that we went ahead and gave it anyway bc the lab was taking forever to get his labs back....so anyway....he didn't respond as well as i'd hoped...but his second lab after the transfusion was the same as the first, so he was stable....and then...
4. normal poop!
this is exciting, because even with black stools ALL week he only got blood three times. and normally, black poop would mean a transfusion a day for us...or more. we did not go up on his amicar. we did not give steroids. we did not do ANYTHING but give red blood cells. and the bleeding still stopped.
it IS getting better.
and with cautious optimism, i say...
the worst
is
over.
- alisha
- wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
1 comment:
The worst is over. Praise the Lord!
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