My photo
wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne

The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Monday, August 10, 2009

two weeks tomorrow

So...they are taking the nice recliner out of our hospital room. A patient is arriving in the room that the recliner, off goes our third person sleeping place. We have a nice lovely uncomfortable rocker to get us through the night will not not not be easy to sleep in! it does not recline! being spoiled was nice for 2 nights. ok, 1. the first night doesn't count b/c we didn't sleep well the first night.

so, here's what's going on. Ridge has been having some dark dirty diapers again, but it seems like they are turning back around. We attribute the darkness of the diapers to a couple things...1, Ridge couldn't eat for a while today....that is possibly a coincidental factor, but last time he couldn't eat, the same thing happened. 2, somewhere between the drs orders and the pharmacy and the nurses, the wrong amt of his medicine was given. This is a big deal b/c it is a continuous drip. And it is what controls the bleeding. So all night, he received almost zero meds....I know some of you might be open jawed right now wondering how they could mess up his meds...i want to feel that way, but i just can't...there's no way i could've changed it. I even had the nurses double check it and have the resident doctor double check it. They all thought it was right. At least it was too little instead of too much, I guess? What's done is done. They fixed it, and they admitted they messed up- they just wouldn't say "who" messed up.

Today was a good day though. I tickled Ridge this morning, and he giggled/chuckled/actually laughed. It was beautiful. Both of my kids are so precious to me. I hate being torn between the two of them, or so it feels, anyway.

Ridge has been so sweet today, more like himself...smiling, talking, being peaceful, even napping. We have a sleep study tonight to figure out the apnea/breathing issues, though he hasnt been having them so far today...blessing that is, but if something's wrong, it needs to show up when we do the study! MRI in the morning to check for neurological issues or something b/c of the apnea, i think? I don't know, I just do the tests b/c I want them to know for sure what is wrong. But MRI means sedation which means no eating, which could mean more dark/red/bloody dirty diapers. This is like some mystery we're having to solve...only it isn't really that exciting b/c it's happening to us.

We are sleepy and about to get some rest for the night, hopefully. Our nurse is someone I know, so that should be good. Last night I was so exhausted I fell asleep praying in the chapel and my mom had to come find me b/c i was so asleep i didn't hear my phone ring-- three different times.

Today we had some visitors-- two wonderful women I grew up around. One who is like my second mother and who has been faithful to visit four times already, I believe. Such a blessing every time I see her. The other has always been a woman I look up to, b/c she has faced much adversity with much grace in her life. She has gone through times I don't think I would be strong enough to go through, and seeing her today really did mean so much to me. I know she understands my pain right now. Thank you to both of you for visiting us, and for taking care of my mom tonight as well. I love you both dearly, and it really did make my day to see you.

I believe that prayer changes things. I believe that God is good. I believe that God knew this would happen even as Ridge was being built over those 9 months I carried him w/in...and I believe that God can heal him. i am pleading for my son in prayer, and I ask you to approach the Throne of Grace with confidence and boldy ask the Father for a miracle within my son's body.

Thank you for the prayers. Thank you for the cards and calls and visits. Today was an easier day...even at the hospital with my baby receiving another transfusion, somehow, I felt a little normal. Not that my circumstances were normal...but I just felt a little normal. And that was good.


Anonymous said...

You don't know me but I am a friend of Juanita Cole! She has put in a prayer request and I have been praying for your baby! My heart breaks for you all! I have never been in this situation but I have a great love for children! I will continue to pray for Ridge and all of you! God bless all of you and I know he can heal that little body! In Gods Love Judy Jones

A. Deb said...

Hi Alisha and Brandon!
I love you guys so much and you are in my prayers constantly. Many in San Antonio are lifting Ridge and your sweet family up to God's Mighty Throne daily...and we will NOT stop interceding on his/your behalf. You stay strong, Sweetie...and when you can't be strong, then let God take over with His strength that is made perfect in our weakness! Alethea told me about Brandon holding Ridge and singing to him...that made me think about the Scripture that talks about how the Father sings over His children...Brandon is not only giving the sweetest gift to his little baby boy, but he is also painting a picture of God's love for all who pass by to see...My prayer tonight is that God will wrap His loving arms around you tight and will sing over you all, giving you His perfect peace moment by moment...and we are all praying for a healing miracle for our little guy! I love you all! A. Deb

Anonymous said...

Alisha and Brandon,
We continue to pray for your little family. God is holding you close and pouring out His love for you - He understands where so many of us cannot begin to.
I want to offer you an idea - when our grandson was in Children's the 2nd time - Jaime and Clint took an air mattress to be able to get some rest. Some of those rooms are very small - but maybe a twin so at least one of you can rest while the other is awake with the baby.
God Bless,
Kathy Robinson

Anonymous said...

I recieved an email about your baby boy and I wanted to encourage you, that our God is a God of miracles...
About two years ago we had our little Allie Joy, she was born with no heartbeat so We were sent to Arkansas Children's Hospital where they did a new treatment called "head cooling'. We stayed there for 17 days. While there we were surronded by family and friends and MANY prayer warriors, so I am a firm believer in the power of prayer.
Allie Joy is a normal little girl now. We went to ACH in June 2009 for her last check up and they say she is doing everything she should be doing now.
My husband told me much later that the Drs told him (while I was still 3 hours away recovering from giving birth) it would be a miracle if she survived past 4 days.
So all that to say, nothing is impossible with our God. Keep the faith and keep praying. Our prayers and all those of my family are with you.
This is ONE of the many verses I clung to during those 17 days!!
You are the God who performs miracles; you display your power amoung the peoples.
Psalms 77:14

Dianne said...

Mrs. Cary,
I just want you to know Ridge and your family have remained in my head like no other prayer request I've ever heard. It's heavy on my heart. I just got out of bed because I realized I hadn't read the blog post for the day. All my prayers include Ridge and your family. One of my favorite verses that keeps coming to mind when I think or pray for you all is: Jeremiah 29:11 (NIV) "For I know the plans I have for you," declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future."