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wife. mom. adjunct professor. we homeschool. i'm a little bit OCD. i love math. bright colors and geometric designs make me drool. we live with a medical rarity, and Jesus saved his life. through that, Jesus is changing us. The american dream and status quo is overrated...and sometimes just plain wrong. our lives, our family, our careers, our faith are all now filtered through a new lens-- thank you Jesus. welcome to our crazy. feel free to take some of it with you, we have plenty to go around.
It's not the load that breaks you down; it's the way you carry it.
-- Lena Horne


The thief comes only to steal and kill and destroy; I have come that they may have life, and have it to the full.-- Jesus Christ

Monday, January 11, 2010

helloooo!!!

well, finally after all the shenanigans in the world, i was able to log in so i could blog a bit.  seriously, took like twenty tries!  or five or six tries, but still, too many.

here's our updates....sunday, the dark poop was back. we came to the hospital. ridge DID have a hgb drop overnight but not a large one.  he still has not received blood bc his hgb is 8.4 so he isn't low enough to receive blood.  the poop has looked much better today.  not perfect, but better.  he spit up some last night, but that hasn't happened today.  i am hoping to go home tomorrow.  he is happy as can be and it seems such a waste to spend those kind of days here @ the hospital.

while no logic goes with this, i/we have noticed his poop gets darker on the weekends.  the weekends are when he is on bactrim, the prophylactic antibiotic.

hmmm...

some other questions i've been asked-- and if i forget yours, please ask it again, because my brain isn't perfect ever, much less right now....
1. why caffeine?  ridge is on caffeine bc of sleep apnea, which i personally do not believe he has.  so hopefully soon we will discontinue that.  because i'm not thinking it does a thing for him.  but, whatever.
2. how's sawyer through all of this?  sawyer likes attention, all the time.  so sometimes he acts out, and i assume moreso bc of this whole ordeal, but how do i know?  he might act out that much even if this wasn't going on, bc he's a ham.  and he loves attention, and he's a mess.  but he's a really good back scratcher and will play with my hair almost anytime i ask him to, and  he has the prettiest blue eyes you've ever seen.  so, i guess, even though sometimes he grates on that last nerve we all have, he's handling this pretty good.  he's learned a lot of terminology no other 3 year old, or few other 3 year olds, knows...and as far as he's concerned, it's normal for a new baby to grow up in the hospital.  so....i don't think he's any worse for the wear.  yet.  and i think we will be out of the worst of the MLT before he's old enough to be too affected.  but that's how i feel today.  I have days where i'm really upset because i feel like sawyer is missing out and we are missing out on raising two boys in a "normal" way.  but today isn't one of those days.  yet.  but if i keep typing about that it might be! so i'll stop with that.

the port works great!  here's a pic...or 3:

he's not really loopy here, he was happy, i just clicked the camera too soon.  he has his central line/broviac on his right side, and the port is the one all dressed up on his left.  and i love that stinkin port!

so...that's all i've got, but i wanted to update you guys and let you know what's going on.  keep those prayers coming, and feel free to comment or send a question/comment my way @ needstobebusy@yahoo.com

for those of you who follow the photoblog, an update is coming there right after i'm finished with this post here.

1 comment:

PJ said...

Hey Gal! Just wanted to let you know that I stopped by. He looks so precious! I am sooooo praying for the day that there are no more hospitals on a regular basis, and he will be healthy! He will be on my Prayer Line until that day comes, I don't care if he 21 years old (or older if I'm still alive and blogging) If they still have computers by then! LOL. I may have a lot of typos by then (worse than now) cause that will put me at 77 years old. LOL!

Love ya Bunches!

PJ

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